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Sourcebook covering Phenylalaninemia

Title:

The Official Parent's Sourcebook on Phenylketonuria

Date Published: 2002-07-15
Pages: 224
ISBN: 0-597-83204-8
   
About the Author(s)/Editor(s)
James N. Parker, M.D.

Dr. James N. Parker received a B.S. in Psychobiology from University of California, Riverside and his M.D. from the University of California, San Diego. In addition to authoring numerous research publications, he has lectured at various academic institutions. Dr. Parker is the medical editor for the Official Patientís Sourcebook series published by ICON Health Publications.

Philip M. Parker, Ph.D.

Philip M. Parker is the Eli Lilly Chair Professor of Innovation, Business and Society at INSEAD (Fontainebleau, France and Singapore). Dr. Parker has also been Professor at the University of California, San Diego and has taught courses at Harvard University, the Hong Kong University of Science and Technology, the Massachusetts Institute of Technology, Stanford University, and UCLA. Dr. Parker is the associate editor for the Official Patientís Sourcebook series published by ICON Health Publications.

About the Series
Designed to help patientís understand the latest information, study or research being conducted on their disease, or condition. Sourcebooks in this series generally cover the following: symptom or symptoms; diagnosis or diagnostic test or tests; cause or causes; prevention; therapy or therapies; natural medicine; drugs and medication or medications; facts on surgery or operations; treatment, treatments or cures; traditional and alternative approaches; what is available to patients for insurance, cost reduction, help and other support, including video, multimedia, dissertations, patents, hospital and library location services. Check with book table of contents for details.
Contents
Introduction
        Overview
        Organization
        Scope
        Moving Forward
PART I: THE ESSENTIALS
Chapter 1. The Essentials on Phenylketonuria: Guidelines
        Overview
        What Is Classical Phenylketonuria?
        Incidence and Prevalence
        Newborn Screening
        Treatment
        Lifelong Management and Follow-up
        Research Is Needed
        Conclusions
        More Guideline Sources
        Vocabulary Builder
Chapter 2. Seeking Guidance
        Overview
        Associations and Phenylketonuria
        Finding More Associations
        Finding Doctors
        Finding a Pediatrician
        Selecting Your Doctor
        Working with Your Childís Doctor
        Broader Health-Related Resources
        Vocabulary Builder
Chapter 3. Clinical Trials and Phenylketonuria
        Overview
        Recent Trials on Phenylketonuria
        Benefits and Risks
        Keeping Current on Clinical Trials
        General References
PART II: ADDITIONAL RESOURCES AND ADVANCED MATERIAL
Chapter 4. Studies on Phenylketonuria
        Overview
        The Combined Health Information Database
        Federally-Funded Research on Phenylketonuria
        E-Journals: PubMed Central
        The National Library of Medicine: PubMed
        Vocabulary Builder
Chapter 5. Patents on Phenylketonuria
        Overview
        Patents on Phenylketonuria
        Patent Applications on Phenylketonuria
        Keeping Current
        Vocabulary Builder
Chapter 6. Books on Phenylketonuria
        Overview
        Book Summaries: Federal Agencies
        Book Summaries: Online Booksellers
The National Library of Medicine Book Index
        Chapters on Phenylketonuria
        General Home References
        Vocabulary Builder
Chapter 7. Multimedia on Phenylketonuria
        Overview
        Bibliography: Multimedia on Phenylketonuria
Chapter 8. Periodicals and News on Phenylketonuria
        Overview
        News Services & Press Releases
        Newsletters on Phenylketonuria
        Academic Periodicals covering Phenylketonuria
        Vocabulary Builder
Chapter 9. Physician Guidelines and Databases
        Overview
        NIH Guidelines
        NIH Databases
        Other Commercial Databases
        The Genome Project and Phenylketonuria
        Specialized References
Chapter 10. Dissertations on Phenylketonuria
        Overview
        Dissertations on Phenylketonuria
        Keeping Current
PART III. APPENDICES
Appendix A. Researching Your Childís Medications
        Overview
        Your Childís Medications: The Basics
        Learning More about Your Childís Medications
        Commercial Databases
        Contraindications and Interactions (Hidden Dangers)
        A Final Warning
        General References
Appendix B. Researching Alternative Medicine
        Overview
        What Is CAM?
        What Are the Domains of Alternative Medicine?
        Can Alternatives Affect My Childís Treatment?
        Finding CAM References on Phenylketonuria
        Additional Web Resources
        General References
        Vocabulary Builder
Appendix C. Researching Nutrition
        Overview
        Food and Nutrition: General Principles
        Finding Studies on Phenylketonuria
        Federal Resources on Nutrition
        Additional Web Resources
        Vocabulary Builder
Appendix D. Finding Medical Libraries
        Overview
        Preparation
        Finding a Local Medical Library
        Medical Libraries Open to the Public
Appendix E. Your Childís Rights and Insurance
        Overview
        Your Childís Rights as a Patient
        Parent Responsibilities
        Choosing an Insurance Plan
        Medicaid
        NORDís Medication Assistance Programs
        Additional Resources
        Vocabulary Builder
ONLINE GLOSSARIES
        Online Dictionary Directories
PHENYLKETONURIA GLOSSARY
        General Dictionaries and Glossaries
INDEX