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Sourcebook covering Arylsulfatase A Deficiency

Title:

The Official Parent's Sourcebook on Metachromatic Leukodystrophy

Date Published: 2002-09-11
Pages: 104
ISBN: 0-597-83019-3
   
About the Author(s)/Editor(s)
James N. Parker, M.D.

Dr. James N. Parker received a B.S. in Psychobiology from University of California, Riverside and his M.D. from the University of California, San Diego. In addition to authoring numerous research publications, he has lectured at various academic institutions. Dr. Parker is the medical editor for the Official Patient’s Sourcebook series published by ICON Health Publications.

Philip M. Parker, Ph.D.

Philip M. Parker is the Eli Lilly Chair Professor of Innovation, Business and Society at INSEAD (Fontainebleau, France and Singapore). Dr. Parker has also been Professor at the University of California, San Diego and has taught courses at Harvard University, the Hong Kong University of Science and Technology, the Massachusetts Institute of Technology, Stanford University, and UCLA. Dr. Parker is the associate editor for the Official Patient’s Sourcebook series published by ICON Health Publications.

About the Series
Designed to help patient’s understand the latest information, study or research being conducted on their disease, or condition. Sourcebooks in this series generally cover the following: symptom or symptoms; diagnosis or diagnostic test or tests; cause or causes; prevention; therapy or therapies; natural medicine; drugs and medication or medications; facts on surgery or operations; treatment, treatments or cures; traditional and alternative approaches; what is available to patients for insurance, cost reduction, help and other support, including video, multimedia, dissertations, patents, hospital and library location services. Check with book table of contents for details.
Contents
Introduction
        Overview
        Organization
        Scope
        Moving Forward
PART I: THE ESSENTIALS
Chapter 1. The Essentials on Metachromatic Leukodystrophy: Guidelines
        Overview
        What Is Metachromatic Leukodystrophy?
        Is There Any Treatment?
        What Is the Prognosis?
        What Research Is Being Done?
        Selected References
        For More Information
        More Guideline Sources
        Vocabulary Builder
Chapter 2. Seeking Guidance
        Overview
        Associations and Metachromatic Leukodystrophy
        Finding More Associations
        Finding Doctors
        Finding a Neurologist
        Selecting Your Doctor
        Working with Your Child’s Doctor
        Broader Health-Related Resources
        Vocabulary Builder
Chapter 3. Clinical Trials and Metachromatic Leukodystrophy
        Overview
        Recent Trials on Metachromatic Leukodystrophy
        Benefits and Risks
        Keeping Current on Clinical Trials
        General References
        Vocabulary Builder
PART II: ADDITIONAL RESOURCES AND ADVANCED MATERIAL
Chapter 4. Studies on Metachromatic Leukodystrophy
        Overview
        Federally-Funded Research on Metachromatic Leukodystrophy
        E-Journals: PubMed Central
        The National Library of Medicine: PubMed
        Vocabulary Builder
Chapter 5. Books on Metachromatic Leukodystrophy
        Overview
        Book Summaries: Online Booksellers
The National Library of Medicine Book Index
        Chapters on Metachromatic Leukodystrophy
        General Home References
        Vocabulary Builder
PART III. APPENDICES
Appendix A. Researching Your Child’s Medications
        Overview
        Your Child’s Medications: The Basics
        Learning More about Your Child’s Medications
        Commercial Databases
        Contraindications and Interactions (Hidden Dangers)
        A Final Warning
        General References
Appendix B. Finding Medical Libraries
        Overview
        Preparation
        Finding a Local Medical Library
        Medical Libraries Open to the Public
Appendix C. Your Child’s Rights and Insurance
        Overview
        Your Child’s Rights as a Patient
        Parent Responsibilities
        Choosing an Insurance Plan
        Medicaid
        NORD’s Medication Assistance Programs
        Additional Resources
        Vocabulary Builder
ONLINE GLOSSARIES
        Online Dictionary Directories
METACHROMATIC LEUKODYSTROPHY GLOSSARY
        General Dictionaries and Glossaries
INDEX