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Sourcebook covering Acquired Hypogammaglobulinemia

Title:

The Official Parent's Sourcebook on Primary Immunodeficiency

Date Published: 2002-07-15
Pages: 240
ISBN: 0-597-83206-4
   
About the Author(s)/Editor(s)
James N. Parker, M.D.

Dr. James N. Parker received a B.S. in Psychobiology from University of California, Riverside and his M.D. from the University of California, San Diego. In addition to authoring numerous research publications, he has lectured at various academic institutions. Dr. Parker is the medical editor for the Official Patient’s Sourcebook series published by ICON Health Publications.

Philip M. Parker, Ph.D.

Philip M. Parker is the Eli Lilly Chair Professor of Innovation, Business and Society at INSEAD (Fontainebleau, France and Singapore). Dr. Parker has also been Professor at the University of California, San Diego and has taught courses at Harvard University, the Hong Kong University of Science and Technology, the Massachusetts Institute of Technology, Stanford University, and UCLA. Dr. Parker is the associate editor for the Official Patient’s Sourcebook series published by ICON Health Publications.

About the Series
Designed to help patient’s understand the latest information, study or research being conducted on their disease, or condition. Sourcebooks in this series generally cover the following: symptom or symptoms; diagnosis or diagnostic test or tests; cause or causes; prevention; therapy or therapies; natural medicine; drugs and medication or medications; facts on surgery or operations; treatment, treatments or cures; traditional and alternative approaches; what is available to patients for insurance, cost reduction, help and other support, including video, multimedia, dissertations, patents, hospital and library location services. Check with book table of contents for details.
Contents
Introduction
        Overview
        Organization
        Scope
        Moving Forward
PART I: THE ESSENTIALS
Chapter 1. The Essentials on Primary Immunodeficiency: Guidelines
        Overview
        What Is Primary Immunodeficiency (PI)?
        Where Do Primary Immunodeficiency Diseases Come From?
        The Immune Defenses
        Types of White Blood Cells
        Genes and PI
        Germs
        Signs and Symptoms
        The 10 Warning Signs of Primary Immunodeficiency
        DNA, Genes, and Chromosomes
        Patterns of Inheritance
        Diagnosing PI
        Treatments for PI
        Important Precautions
        Primary Immunodeficiency Diseases: Some Examples
        B Cell (Antibody) Deficiencies
        Combined T Cell and B Cell (Antibody) Deficiencies
        Severe Combined Immunodeficiency (SCID)
        Partial Combined Immunodeficiencies
        T Cell Deficiencies
        Defective Phagocytes
        Complement Deficiencies
        Deficiences/Cause Unknown
        Research In Progress
        Future Research Challenges
        Resources
        More Guideline Sources
        Vocabulary Builder
Chapter 2. Seeking Guidance
        Overview
        Associations and Primary Immunodeficiency
        Finding More Associations
        Finding Doctors
        Finding a Pediatrician
        Selecting Your Doctor
        Working with Your Child’s Doctor
        Broader Health-Related Resources
        Vocabulary Builder
Chapter 3. Clinical Trials and Primary Immunodeficiency
        Overview
        Recent Trials on Primary Immunodeficiency
        Benefits and Risks
        Keeping Current on Clinical Trials
        General References
        Vocabulary Builder
PART II: ADDITIONAL RESOURCES AND ADVANCED MATERIAL
Chapter 4. Studies on Primary Immunodeficiency
        Overview
        The Combined Health Information Database
        Federally-Funded Research on Primary Immunodeficiency
        E-Journals: PubMed Central
        The National Library of Medicine: PubMed
        Vocabulary Builder
Chapter 5. Books on Primary Immunodeficiency
        Overview
        Book Summaries: Online Booksellers
The National Library of Medicine Book Index
        Chapters on Primary Immunodeficiency
        General Home References
        Vocabulary Builder
Chapter 6. Periodicals and News on Primary Immunodeficiency
        Overview
        News Services & Press Releases
        Newsletters on Primary Immunodeficiency
        Newsletter Articles
        Academic Periodicals covering Primary Immunodeficiency
        Vocabulary Builder
Chapter 7. Physician Guidelines and Databases
        Overview
        NIH Guidelines
        NIH Databases
        Other Commercial Databases
        The Genome Project and Primary Immunodeficiency
        Specialized References
PART III. APPENDICES
Appendix A. Researching Your Child’s Medications
        Overview
        Your Child’s Medications: The Basics
        Learning More about Your Child’s Medications
        Commercial Databases
        Contraindications and Interactions (Hidden Dangers)
        A Final Warning
        General References
        Vocabulary Builder
Appendix B. Researching Alternative Medicine
        Overview
        What Is CAM?
        What Are the Domains of Alternative Medicine?
        Can Alternatives Affect My Child’s Treatment?
        Finding CAM References on Primary Immunodeficiency
        Additional Web Resources
        General References
        Vocabulary Builder
Appendix C. Researching Nutrition
        Overview
        Food and Nutrition: General Principles
        Finding Studies on Primary Immunodeficiency
        Federal Resources on Nutrition
        Additional Web Resources
        Vocabulary Builder
Appendix D. Finding Medical Libraries
        Overview
        Preparation
        Finding a Local Medical Library
        Medical Libraries Open to the Public
Appendix E. Your Child’s Rights and Insurance
        Overview
        Your Child’s Rights as a Patient
        Parent Responsibilities
        Choosing an Insurance Plan
        Medicaid
        NORD’s Medication Assistance Programs
        Additional Resources
ONLINE GLOSSARIES
        Online Dictionary Directories
PRIMARY IMMUNODEFICIENCY GLOSSARY
        General Dictionaries and Glossaries
INDEX